Friday, June 15, 2012

Rhabdomyosarcoma

Today we got Cheyenne's final pathology report.  She has a rare form of cancer called rhabdomyosarcoma.  There are 2 different kinds, Cheyenne has the 'better' of the 2(embryonic).  Cheyennes tumour is also in a 'favourable' location and CT shows that it is encapsulated.  She needs a full body CT scan this coming tuesday to confirm there are no other tumours; however, from all other tests completed they feel confident that this is the only site.  Once this is confirmed, they will tell us what stage she is in.  The staging is important to choosing a course of treatment.  The doctors feel it is a low-risk stage.  We were expecting to get more of a concrete treatment plan. 

Here is what we do know about the coming week.
Tuesday-she goes for a sedated full-body CT scan.
Thursday morning- we have to go to the day clinic for blood work and to get the results from the CT scan.  These results will determine her path of treatment.
Thursday evening- Cheyenne will be admitted into the hospital for IV hydration.   This is to prepare her for chemo and to flush her kidney(the kidneys help to excrete the chemo).
Friday-Cheyenne will receive her first chemo treatment.  She will be kept for a couple days to monitor and see how she responds.
As of right now we don't know which meds she will be on.  That will be determined by the stage of her cancer.
We will  get our treatment schedule/calendar at that point also. 
Thank you for your prayers today.
Please continue to pray that her CT scan will be clear and that we can get started her chemo soon.
Please pray for our other kids, as they are bearing burdens in their own ways at this time.

3 comments:

  1. Your family has been heavy on our hearts and minds. Praying for you all as you adjust to this new path God is taking you down. May he give you great peace as you start this journey, and may you feel his strength and comfort.
    Praying that all things will work together for good, to the glory and praise of God. May his light shine brightly.

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  2. We'll be praying for Cheyenne, the doctors and for God's peace that transcends understanding for all of you.

    Harry & Trudy

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  3. You are all in our prayers constantly, Sonya. Praying that God will uphold you and give each of you special strength for these next weeks.

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