Monday, February 17, 2014

port removal cancelled

We received a call friday to say that Cheyenne's port removal surgery for this coming Wednesday had been cancelled. The operating room was needed for an urgent case.  We have been placed on a cancellation list and will hopefully be done within the next 90 days.  Will keep you posted.

Wednesday, February 12, 2014

February update

I am having issues with this blog.  It has taken me 4 attempts to get  logged in.  If it works on the PC, then it wont work on the tablet and vice versa.
Last month Cheyenne had her 6 month post chemo tests.  This included bloodwork, a chest CT and an MRI of her head.  We spent last monday in clinic getting our results.  The oncologist was very pleased with Cheyennes progress over the past 3 months.  There previously was an area of concern on her MRI that was thought to be post operative scar tissue or damage from the radiation. This has resolved itself.  However another area was detected and at my insistance the doctor personally went down and had a meeting with the  radiologist and another specialist and determined it was not a recurrance but is thought to be a distorted blood vessel.  This could be caused from radiation damage, but is most likely from Wyatt and Cheynne smacking heads the week before her MRI.  We will have to wait until her next scans in April to know for sure, but I have peace about it for now.
Cheyenne is headed to McMaster today for her pre-op to have the port removed next Wednesday.   Please keep her in your prayers.  Although it seems to be a fairly easy procedure,  it still is a surgery.  And for Cheyenne, there seems to be an emotional attachment to her chemo accessories.
The last couple weeks have had a lot of ups and downs emotionally.   We get so attached to our friends at the hospital, they become a part of our families.
I'll start with the positive news, Collin finished his last inpatient antibody therapy treatment in hospital.
Jamshid, who is the same age as Cheyenne, was found to have a tumour in his brain at his post chemo scan.  He underwent surgery to have it removed Monday and will proceed with radiation once he is healed.
For an update on Browyn, go here.
Today is the funeral of Austin, a fellow patient from McMaster who passed away last week.
Last week Josiah, was diagnosed with leukaemia.   In April 2012, David went to Mexico to help the Dyck family with building the new hall.  They have been missionaries in Mexico for the past 9 years.  They were up visiting family in Ontario when they got Josiah's diagnosis. They no longer have OHIP coverage, and are Josiah is loking at 2-3 years of treatment.  He is currently being treated in London.  I believe they are setting up a trust fund to help with his healthcare costs.
Please keep all of our friends in your prayers.  And please keep Cheyenne in your prayers as she has her port removed next wednesday.