Week 10

We are home, after the start of our fourth round of chemo.  Ten weeks in, the time has went fast.  First I would like to thank all those who help in many different ways.  We appreciate your friendship.  Today I met a new family who just got told their daughter has cancer.  She is 22 months old.  I was introduced by another set of parents, Marty and Emily.  I think they are the official welcoming team(just joking).  This young couple were so helpful to us when Chey was first diagnosed.  Marty was a real help to David and took him on a tour, showed him the Ronald McDonald Room(coffee and snacks) and took him to get a parking pass(or as we call it-our time share).  Their little guy, Griffin has the same type of cancer as Chey, and they love to play nurse together with their beloved Nancy(child life specialist) in clinic.


This is a picture from before she started chemo-with Nancy and Griffin



Here is the link to an article on the Gazing Balls that his Grandma Jane makes.  Grandma Jane comes to clinic every week and all the kids love her.  Shes always trying to make them laugh.

Chey did quite well this week.  She was admitted thursday night and had her big chemo doses yesterday.  She is starting to feel more at home when in the hopsital.  Yesterday she had one of her favorite nurses, and she even let the nurses put the meds in her NG tube(huge milestone for us).  Her neutrophils(immunity) weren't as high as normal on Thursday, which means she will probably be neutropenic faster this time.  Today haemoglobin was low so we have to back Tuesday for more bloodwork, as well as Friday for her regular clinic visit.  On the bright side, she doesn't have any of the vincristine(small chemo) this round, so it should give her a couple weeks to have a break.  In the coming weeks she has an MRI and CT scan(both sedated).  Please pray that she will have comfort for these tests.  She gets very anxious about 'sleepy' medicine.