|Marcy and Cheyenne - Vanessa is missing, but these are the ladies in the booking office that let Cheyenne feed the fish and write on their whiteboard.|
|Cheyenne's radiation techs (L-R)|
Kash, ?Elham, Cheyenne, Dinitra and Janessa in their jammies.
|Jammies and jewelry, notice Cheyenne convinced them to trade gold for plastic|
I have enjoyed the last few morning to get up and not have to rush out. The kids have loved it too. I will be open and honest and tell you that the last 6 months have taken its toll on the kids in different ways. The last 4 weeks have exacerbated that effect. I would just ask that people be aware of their actions towards Cheyenne for a couple of the following reasons.
Wyatt gets upset and feels displaced very quickly. He sees all the fun things Cheyenne gets and that blinds him from seeing the pain that she endures. I realize that this is a heart issue for him and I do not want him to resent her and be bitter because of Cheyenne's illness. Giving Wyatt things is not the answer either. It is such a hard balance. I tried taking him with me a couple weeks back to rads and clinic so that he could understand what Chey has to go through. He saw her get her head screwed into the mask, get a fingerpoke and her port accessed. His assessment of the day...she gets alot of food. For those who don't know Wyatt, he refers to his stomach as his food hump(just like a camel, haha).
Cheyenne has come to think in the past few weeks that she is the boss of her siblings. We struggle with her behaviour after she has been constantly surrounded by adults. She thinks she is an adult and she has authority to 'rule' over the other kids. She also thinks that she is entitled to have as she wants. She has gotten really good at munipulating lately, divide and conquer. I would ask that when around Cheyenne that you PLEASE respect our authority. This means if we say NO, obedience is not an option. People may think it is harmless to give in to her over 'a candy', but for her small victories just encourage the negative behaviour.
Brielle is attempting to mimic Cheyenne's behaviour (except her little 2 yr old brain isn't quite as good at it). Brielle has also taken to her own form of self-defence, her water bottle up the side of her siblings' head. Have to say she probably comes by that honestly, I fought dirty when I was little ;)
Cassidy is my mellow baby, but she is strong willed. We have tried multiple formulas and different bottles and she is just starting to take a bottle at lunch. I think she knew that if she took the alternative then she would get the alternative. At 11 months she is taking 4oz of goat milk with her lunch. I say that proudly, it is an accomplishment.
Over the next weeks could you please keep all of my children in your prayers. It is especially my burden at this time. We appreciate so much that you are praying for our family and helping to share our burderns on so many levels. To those who have lovingly prepared meals for us, and those who have opened their homes and babysat our children and the financial sacrifice people have made. It has not gone unnoticed, and it is so humbling to see how God is bringing us through this trial yet supplying all our needs.
Cheyenne is slotted to be admitted thursday night for chemo Friday. This will depend on bed availability and of course her blood count. I will let you know.