Update July 23, 2013

I know it has been a few weeks since the last blog post.  Life has been busy so I will try to capture the past weeks in one post.

A couple weeks back we were able to go camping for the weekend in Selkirk.  It was a nice clean and open park but the beach was rather stoney.  Either way, we had a great time out with just the 6 of us being a 'ordinary' family.  The kids had a great time at the beach, riding their bikes and having a campfire.

the joys of ringalo's

 

We have a had a few appointments with the Oncologist and as of last thursday the NG tube came out!  Cheyenne had gained 2.5 pounds in 2 weeks and much to her frustration Andrea pulled it out.  She yelled at her 'Now I have to take my medicine in my mouth'.  I have figured out how to successfully get her meds into her, though as her taste returns she may figure it out.  For now ignorance is bliss as she is perfectly happy thinking that she no longer has to take medicine. 

Thursday we also celebrated Wyatt's 7th birthday.

 As some may know we had a celebration party for the end of Cheyenne's treatment.  I will start with an apology because I have received some invites returned in the past few days and know of some others that never reached their destination.  Not very happy with Canada Post.

Here are a few pictures I am *using* from Leah K.  Thanks

Cheyenne's Journey...

Not too shy to shave...

48 weeks...

Chey's Cheerleaders... these are just a few

To God be the glory...





Cheyenne's Great-Great Uncle John with his Pony Rides

A few of the kids who made use of the bouncey castle

I don't have a picture of the meal but we enjoyed beef and pork on a bun, and a large selection of salads.  Thanks to all who had a part in making the meal happen.

Hello Kitty cake by Aunt Tori

Candy Bar - this is what happens when a 5 year old helps plan her party with Aunt Sarah
Oh and you can see the Sno Cones being made in the background



Sugar station- again Hello Kitty style.  Cupcakes, sugar cookies and watermelon. 



We had a great time.  It was slightly overwhelming and I apologize if I didn't get a chance to talk to you.  For those who were unable to attend, I will try to get more pictures up for you

Also there were 3 folding chairs abandoned at the farm

1. blue 'tiny tot' chair

2. blueish grey, no arms

3. black with a logo on the armrest

If any, or all of these chairs belong to you please let me know.

scan results

Just a quick note to let everyone know that Cheyenne got her CT and MRI results today.  Everything was good, and no evidence of any tumour.  They were able to tell by her MRI that she has a sinus infection.  She has had a runny nose the past week so we have to keep an eye on it and if she develops a fever then we are to head in for antibiotics and observation. 

Happy Canada Day

Myself, Cassidy and Cheyenne

if you look close you can see Brielle peeking out the window

Happy Canada Day everyone.  We had a great morning out at the Lynden Canada Day Party.  We went in David's work truck with the kids.  They loved the idea of it until Cheyenne noticed that people were looking at her.  That was enough for her. 
Last week was a busy one.  Monday started out with a class trip for Wyatt and Cheyenne to the Twin Valley Brantford Zoo.  They had a great time despite the drastic heat and humidity.
Tuesday morning we headed off to the hospital for Cheyenne's CT appointment.  The hospital is in the midst of their construction so we were sitting in the old CT area for a bit before someone noticed us and sent us in the right direction.  Cheyenne was great and went in by herself and we were done in about 10 minutes.
Wednesday was a special day at school for Cheyenne.  You may remember that last week there was a picnic at school and a bakesale also to raise money for The Bravery Bead Program.  The school had a closing assembly where they announced the total raised and presented the cheque.  The money was donated to McMaster in Cheyenne and Mateo's name.  Mateo finished his treatment for leukemia last august and is one of Cheyenne's classmates

And the total raised was $1059.00
(L-R)Vince and Mateo Formiglio, Cheyenne and Sonya DeGraaf, Mrs Munro-Cheyenne's Teacher

Thursday was the last day of school so there was lots of excitement around the house.  Knowing Chey's test was later in the day I let her stay up late so I could get some snacks into her and then hopefully she would sleep in a bit friday morning.  So much for my plans.  Shortly after 10:30pm I received a call from the hospital that there had been a cancellation and Cheyenne could have her MRI at 815 instead of 1245.  So it was an early morning up and going, dropping kids off and heading to clinic to get accessed for the MRI.  Once her port is accessed. the nerves kicked in.  As we headed down the hall to MRI, she started to cry and say that she was scared.  Once we headed in we kept to the usual pattern.  Cheyenne won't lie down to get sedated, instead I sit on the bed with her and hold her 'til she falls asleep.  The MRI usually takes about an hour and then it takes some time for her to wake up. 
While in the waitingroom I met a mother whose son was getting an MRI also.  Little Danny is 3 and had a brain tumour(benign) removed in March.  Because it was non-cancerous he didn't have any treatment but is monitored every 3 months for growth.  Please keep this little boy in your prayers.
We head back to clinic on Friday.  Her counts was ok last week, but it could still take time for her cloodwork to stabilize.  Her platelets are still high, and her haemoglobin is on the low end.